What is PPIE? We define public involvement in research as being research that is carried out ‘with’ or ‘by’ members of the public rather than something that is done ‘to’, ‘about’ or ‘for’ them.
The involvement of patients and carers is vitally important in making sure our activities are relevant to the people our research affects. At every stage of the research cycle, from helping to decide what is an important research question, to how best we can carry out that research, and how we communicate the results, patient and public involvement helps to improve research quality and accessibility. We are working to establish research advisory groups modeled on the success of existing local groups with stable memberships meeting regularly, thus enabling longer-term collaborative relationships with researchers to develop. We are also part of a mapping exercise collecting information from across the network of 20 BRCs and beyond on how the impact of PPI can be evaluated. We invite PPI representatives to join the Sheffield BRC Executive board as members (where PPI is a standing item on the meeting agenda), and to join our External Scientific Advisory Group, to help steer the PPI strategy and add value for research prioritisation.