The Sheffield Biomedical Research Centre aims to progress new clinical trials for improving the treatment and care for people living with a range of neurological diseases.
The involvement of patients and carers is vitally important in making sure our activities are relevant to the people our research affects. At every stage of the research cycle, from helping to decide what is an important question to research, to how best we can carry out that research, and how we communicate the results, patient and public involvement helps to improve quality and accessibility.
Find a panel or research advisory group
Motor Neurone Disease
Sheffield Motor Neurone Disorders Research Advisory Group (SMNDRAG) are a group of MND patients, carers, past carers, associates and clinical and scientific links whose members meet quarterly in SITraN and hear from researchers on a wide range of projects. SMNDRAG welcome new members. More details about the role of membership and application is available by contacting email@example.com
The South Yorkshire Dementia Research Advisory Group (SYDEMRAG) has members from a variety of backgrounds, united by the common goal of fighting Dementia. SYDEMRAG meet quarterly in SITraN hearing from scientists and clinicians and keep in contact via email once per month. New members are always welcome to SYDEMRAG and skype facilities are in place to enable joining a meeting remotely. Further opportunities to get involved in Dementia research can be found by registering interest with Join Dementia Research.
Parkinson’s UK host quarterly Yorkshire and Humber Research Interest group meetings in a rotation of locations including SITraN and York University. The members of the group came together via the Research Support Network. They provide patient and public involvement support to Parkinson’s researchers and arrange events for local people to learn about Parkinson’s research. New members are welcome and skype facilities are available to accommodate remote access. For more information about the group please contact firstname.lastname@example.org.
If you are interested in being contacted to take part in voluntary research involvement activities based around stroke research such as surveys or focus groups, contact Kate Lavender (Katherine.Lavender@sth.nhs.uk) for more information.
The Yorkshire and Humber NHS Genomic Medicine Centre PPI Panel meets every two months in locations and dates set well in advance in discussion with members. If you have any questions or would like to join the Panel, please email Debbie Beirne on email@example.com.
Sheffield Teaching Hospitals NHS Foundation Trust co-ordinates Patient and Public Involvement in many different areas of health research. The Clinical Research and Innovation Office provides comprehensive information on their website about getting involved and currently maintains 15 different research advisory and involvement groups.
There are many benefits to patient and public involvement in research including:
- Include patient and carer perspectives in research proposals
- Help identify and prioritise research topics that are important to patients and families
- Improve recruitment to research studies
- Help researchers to write clear lay summaries and patient information sheets
- Help to share research findings with a wider audience
- Raise awareness of the conditions being investigated
- Help you to understand the research being conducted
- Meet like minded people